Just the other day, I was telling Kurt that I was not sure if the meds, the diet, etc are doing THAT much. I know that they are doing something, but I was feeling frustrated and asked him, "Is all of this REALLY helping us?" This last week though, because of my birthday, we have eaten a bunch of things we are not supposed to be eating. We had cake, chinese food twice, and some cheesecake. First off, I must say, it was Heavenly. haha. When you have not eaten that type of food for months, it tastes quite amazing. However, all of us have spots on our bodies now....Kurt suddenly has lesions on him, an he has never had them before. I have about ten on me, including one on the end of my nose (lovely). Lexi has three or four on her, and Livie has one on her arm. Lexi's head is also not looking good right now....which is very frustrating. She gets upset that she has these lesions on her head, and there is nothing that we have done that is making them go away. I have them on my head as well, but Lexi's seem to be worse. Mine itch though, and Lexi says hers do not. I definately notice a drastic difference in how bad her head looks though, when we eat something we should not eat vs. things we should eat. It is very difficult to keep a 4 year old from never eating anything that she is not supposed to have though....without making her feel very different and deprived. It looks like the next step for Lexi's head is to go to a pediatric dermatologist. Maybe they will have something that will at least help the lesions to go away. I have definately noticed that eating things we are not supposed to causes symptoms to flare up. On one hand, that is really discouraging. It shows that there is still a problem and that we cannot eat whatever we want, without having to pay for it. On the other hand, it is encouraging. It shows that all of this effort to help us get better is doing something. All of the pills and meds and shots, and all of the diet restrictions, are helping. Below are some photos of the lesions that we have right now. It is crazy to think, that next week, it has been one year since we left that mold house.... and this is still something that we are dealing with daily. I have faith.....we will be healed. Gotta keep on keepin on.
**Here is one of the lesions on Lexi's head as of 1-30-11. She has several of these spots on her head. They do not seem to itch or bother her physically,but emotionally, she is sensitive
about them. The spots get kind of raised, with a silvery like film on them. We can scrape the film off, and then they will flake. We use a special shampoo on her hair to help keep it as controled as we can. Last year, when this all surfaced, her head got so bad that she actually started loosing her hair in patches, which devestated her. The shampoo and the meds seem to be keeping it from getting to that point, but so far, it has not gone away. We try to keep her positive about it and tell her that the medicine she takes 4 times a day, for 6 months, is going to help them to heal. She is such a little trooper. I am so proud of my big girl, who is only 4 years old, for dealing with all of this so well. **
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